5th December 2023

Showcase Saturdays

Greg Johnston

Share This

Freddie’s Story

‘Freddie the fighter’ (as we like to call him) was born when I was 26 weeks pregnant due to an infection. Thankfully he was able to get a bed at the amazing Neonatal Intensive Care Unit at the RVI. We will forever be thankful for the support of everyone who works on the unit, as well as Tiny Lives charity.

Our support from Team Evie came when, unfortunately, just as we were about to be discharged home after almost 3 months, Freddie fell very unwell with RSV. Due to his prematurity and several times being intubated, Freddie had already been diagnosed with CLD (Chronic Lung Disease). This meant that he struggled to cope with RSV and required intubated again, this time on Paediatric Intensive Care. All of this happened very quickly a week before Christmas.

Team Evie provide numerous things on the ward, one being a sensory light up box which played music. I remember this vividly, as I used music to drown out the sounds of the beeping machines, hoping that freddie would find some comfort in it. We were also given a Christmas box with treats, biscuits and even homemade cake! This was honestly amazing to receive, as we were still admitted on Christmas Day.

Thankfully Freddie made a full recovery and I was able to spend my first night beside my baby, after 3 months, on New Year’s Eve.

Freddie is now a happy, thriving 1 year old, and it seems like a distant memory. But we will never forget the kindness of Team Evie during our stay on the Paediatric Intensive Care Unit.